One Pound Nine: A Memoir
She weighed one pound nine ounces. The doctors said she would not survive the night.
She survived for sixteen years.
Born at thirty-one weeks with no heartbeat and no breath, Sarah Claire Innes-Mason arrived in the world weighing just 735 grams - and immediately began defying every prediction made about her. Born without a pancreas, she became one of the first two children in the world identified with her rare genetic condition, helping researchers unlock a discovery that would change medicine.
But this is not a book about a diagnosis. It is the story of a girl who loved fiercely, laughed loudly, and lived completely - who adored Pok mon and the colour pink, who watched hippos in the dark and chose a lion at a game reserve, who learned to make her mum a cup of coffee. And it is the story of the mum and the dad who raised her, who never once stopped fighting for her.
Told with unflinching honesty and overwhelming love, One Pound Nine is a story of prematurity, rare disease, faith, family, devastating loss, and a life that mattered far more than its years.
She is travelling her own path.
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