One Day Soon: A moving verse novel about Motor Neurone Disease

By Cristy Burne

What if one day soon never comes?

When Alex's parents receive a message that brings shocking news, his whole world is turned upside-down: Alex's uncle has been diagnosed with a genetic form of Motor Neurone Disease. The ripple effect is immediate - it means his dad has a fifty per cent chance of carrying the fatal gene. And if Dad has the gene, Alex has a fifty per cent chance of carrying it, too.

But even as Alex grapples with mortality, he discovers the unexpected joy, deep love and impromptu dance parties that come from living closer to death.

Told in verse, One Day Soon is a story of how, ultimately, a few special moments can matter most.

• Format: Paperback
• Language: English
• ISBN: 1760995614
• ISBN13: 9781760995614
• Release Date: April 2026
• Publisher: Fremantle Press
• Length: 210 Pages
• Weight: 0.46 lbs.
• Dimensions: 0.5" x 5.1" x 7.8"
• Age Range: 8 to 12 years
• Grade Range: Grades 3 to 7