The effects of a devastating disease differ with every victim. When Ed Kluft set out to explain to his relatives and friends what was happening to his body, he found a purpose beyond his family and himself. Other sufferers needed a voice, an honest voice. In Book 1, the first of three in this volume, Ed's honesty may be hard to take even when tempered with Ed's wry humor. But the reality of life with Parkinson's is inescapable. The disease is progressive and incurable. Ed learned in community support groups how different the women's experiences were. He asked and then cajoled Sheila Feige to share her life with Parkinson's-a life far removed from his own. In Book 2 she tells her story with a charming mix of frustration and optimism. The reader will find the bonus section startling. Sheila convinced Ann Klonicke to stop hiding her Parkinson's from her neighbors, to share her unique experiences. Sheila includes Ann's Story in her book. Throughout Ed and Sheila's narratives one reality shines forth: no Parkinson's patient can manage without care givers. Many of the care givers whose loved ones attend support groups with Ed and Sheila have written with candor and courage about how Parkinson's has affected their lives, their relationships. Book 3 is dedicated to that essential group.
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