Neurofibromatosis is a disease that disturbs the proper growth of the cells of your nervous system. It is genetic, which means that you may suffer from it because one or both of your parents had this disease. If you get affected with neurofibromatosis, you have an increased risk of being affected with other kinds of tumors related to nervous system, such as spinal cord tumors. Cancer is caused by neurofibromatosis tumors in very rare cases. So far, there is no definite cure for neurofibromatosis. However, researchers and clinicians have discovered new ways to treat patients with specific neurofibromatosis-related problems.
This poorly edited, outdated pamphlet (seven chapters covering a total of 41 pages) left me disappointed. The ten page appendix gives URLs for general health information but nothing specific to NF. Its listing of five NF organizations includes the March of Dimes, the National Cancer Institute and an URL for an organization that no longer exists.
I know there are very few books about NF. I understand the hope that "treatment options" in this title induces. But don't buy this. You will have more success searching for information online and you will save $13 plus tax.
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