Living with Spina Bifida: A Guide for Families and Professionals

By Adrian Sandler

Book Overview

The most common complex birth defect, spina bifida affects approximately 1 out of every 1,000 children born in the United States. In this comprehensive new guide, Dr. Adrian Sandler offers a wealth of useful information on the medical, developmental, and psychological aspects of this condition. Accurate, accessible, and up-to-date, Living with Spina Bifida is written especially for families and professionals who care for children, adolescents, and adults with spina bifida. Chapters are arranged according to the developmental stages of childhood: from birth through infancy, school age, adolescence, and young adulthood. In each chapter, Sandler discusses relevant medical, health, and psychosocial aspects of spina bifida, addressing such concerns as education, daily living, and family relationships. Numerous illustrations, a glossary, a list of spina bifida associations, suggestions for further reading, and special parent-to-parent sections further enhance the text. Positive and practical in its approach, this guide will be a valuable resource for families as well as for doctors, health care workers, teachers, therapists, and other professionals involved in caring for children with spina bifida.

• Format: Paperback
• Language: English
• ISBN: 0807846570
• ISBN13: 9780807846575
• Release Date: September 1997
• Publisher: The University of North Carolina Press
• Length: 296 Pages
• Weight: 1.15 lbs.
• Dimensions: 9.3" x 0.8" x 6.2"
• Grade Range: Postsecondary and higher

Customer Reviews

Useful, but maybe a little bit dated

While this book has lots of good and useful information, it's also obvious that the book was originally written ten years ago; some of the information, based on my recent experience, is dated. If you need resources on spina bifida, there aren't many, and I'd recommend picking this one up, but doublecheck any of the information in it against current practice before you act based upon it. The new introduction is nice, but the book could stand to be updated throughout.

Living with Spina Bifida - A Guide for Families and Professionals

This is an awesome book. I only wish that I had found this book before I had my baby. It would have helped me tremendously. I will use this book for years to come.

A great starting point for the parent of a child with SB!

The book goes over specific procedures that are common diagnostic tests for a child with spina bifida and it also is great source of information regarding the physical differences a child with SB may have. It is a "must read" if you love someone with SB! Neurology, urology, orthopaedics and pediatrics are all covered somewhat. Great reference too!