Down Syndrome: Visions for the 21st Century

Book Overview

Der Band bietet einen aktuellen Überblick über klinische, entwicklungsbezogene, psychosoziale, erziehungs- und berufsbezogene Fragen bei Patienten mit Down Syndrom.

Er diskutiert auch die Konsequenzen des Human-Genom-Projektes und die Sequenzierung des Chromosom 21.

Erörtert aktuellste Entwicklungen, u.a. zum Thema Sexualität, Einbeziehung, Übergang ins Erwachsenenalter und Rechtsprechung.

Behandelt die aktuellsten Neuerungen der "Health Care Guidelines for Individuals with Down Syndrome".

Enthält auch Material zu mitunter kontrovers diskutierten alternativen und unkonventionellen Therapieansätzen.

• Format: Paperback
• Language: English
• ISBN: 0471418153
• ISBN13: 9780471418153
• Release Date: June 2002
• Publisher: Wiley-Liss
• Length: 496 Pages
• Weight: 1.54 lbs.
• Dimensions: 1.1" x 6.0" x 9.3"

Customer Reviews

Useful Reference

"...a useful reference tool for families and service providers." (Human Genetics)

Terrific Compendium

"...a terrific compendium of the wide array of topics...whatever the challenges that lie ahead...we are much better prepared by the information and vision provided by this excellent book." (Archives of Pediatrics and Adolescent Medicine, May 2003)

"Exceedingly Valuable"

"...exceedingly valuable for a wide spectrum of individuals: parents, professionals, caregivers, and researchers..." (American Journal of Human Genetics, Vol. 72, 2003)

Recommended Book

"I...consider a copy of this book a must for every institutional and personal library." (Journal of the National Medical Association, March 2003)

A collection of very interesting articles

At the NDSS annual conference in Washington, DC in 2000, the sponsors asked the participants to share their ideas. This book is a result of that request. Many of the names will be familiar to those who live in the world of Down syndrome. There are articles by Martha Beck Ph.D. and Siegfried Pueschel M.D. on the role of the family; Len Leshin M.D., Pat Winders P.T., and William Cohen M.D. on health issues; George Capone M.D. and Joan Medlen R.D. on psycho-social issues; and Chris Burke on living with Down syndrome; as well as a host of others. The book also features articles on communication, inclusion, advocacy, research, and self-determination. There is a wealth of very useful information in this book. David Patterson Ph.D. writes about the human genome project and what impact it may have on understanding Down syndrome. Libby Kumin, Ph.D. writes about maximizing communication and language skills in infants, toddlers, children, and adolescents. Patricia Logan Oelwein, M.Ed. writes about math and reading skills in children with Down syndrome. There are also a few lesser known names in here such as John Peter Illarramendi, Jeffrey Mattson, Mia Peterson, and Joshua G. O'Neill, all people with Down syndrome who write about their lives, hopes, and dreams. They remind us that people with Down syndrome can achieve a great deal and can live wonderfully fulfilling lives. This isn't a book for a new parent and it certainly shouldn't be your first book on Down syndrome. There are other books such as "Babies with Down Syndrome," that would be a better choice as a first book. But this book does provide a lot of very useful and interesting information. Anyone interested in finding out what is going on in the world of Down syndrome will want to get a copy.