Chronic illness - learning to live behind my smile

By Jane L. Edwards

I have vasculitis, a rare chronic autoimmune disease. But the disease type does not define the challenges faced by those of us with a life-altering chronic illness.

Our challenge is to get up each morning and keep going, to juggle our clinical appointments, to make sure we have enough energy for the day out with the family we planned a month ago. We need to make sure we have enough medication to last the holidays to understand enough of what our doctors say to challenge them if we disagree with them.

In short, we must prioritise our health and fight for the best care possible. After ten years of managing this complicated disease, this book is a glimpse into what I learned and some of my mistakes in managing my care.

My resilience and determination have kept me going, and I have kept smiling throughout, I hope this book can help you to do the same.

Note: several sections of the book talk about the U.K. health system NHS.

Note: several sections of the book talk about the U.K. health system NHS.

• Format: Paperback
• Language: English
• ISBN: 1075727863
• ISBN13: 9781075727863
• Release Date: July 2019
• Publisher: Independently Published
• Length: 160 Pages
• Weight: 0.49 lbs.
• Dimensions: 0.3" x 6.0" x 9.0"