Triumph Over Cystic Fibrosis: A Care Giving Health Guide for Patient and Family [Large Print]

By Annette Purseley

The awfulness of CF has been touchingly described in such books as Annette Purseley: The purpose of this book, Triumph Over Cystic Fibrosis, is to show the symbiotic relationship between people who share this life-threatening disease into adulthood. This book describes their struggle throughout their lives to live normal lives despite having cystic fibrosis and grappling with the realization that they will die young. Their individual life story is an honest and gripping portrayal of the daily struggle associated with long-term hospitalization, the impact of chronic illness on marriage and family, and the significance of a support network to continuing survival. It also reflects the physical and emotional challenges of a particularly aggressive form of CF.
Different people had to endure the daily regimen of chest percussion, frequent doctor visits, and lengthy hospitalizations before scientists discovered the genetic mutation that causes CF. However, despite numerous setbacks, their deep dependence on one another enabled them to survive long enough to benefit from the miraculous lung transplants that marked a turning point in their lives: We have two lives-one of growing up with a chronic illness and the other of new opportunities and blessings we could never have imagined. In this journal, they honor individuals who formed their experiences. The power of perseverance and, ultimately, hope can be learned a lot from these two remarkable sisters.

• Format: Paperback
• Large Print: Yes
• Language: English
• ISBN: B0C2SDCPZJ
• ISBN13: 9798392439751
• Release Date: April 2023
• Publisher: Independently Published
• Length: 58 Pages
• Weight: 0.20 lbs.
• Dimensions: 0.1" x 6.0" x 9.0"