The Sparkle in my brain: A story about epilepsy

By: Love, Desire

Epilepsy can be challenging to understand, especially for children. This book is to present it in a compassionate, relatable, and empowering way that will help them learn and empathize. This story was inspired by my handsome son, Christian. At the young age of 6 months, he was diagnosed with Epilepsy. It took a long time to figure out why he was so sick, including a very traumatic experience. Through it all he has been a fighter

Never being formally educated on the illness, I wasn't prepared. But through research and groups, I familiarized myself so that he could have a comfortable life. I didn't understand how challenging it would be for others around. At first, Christian was a little shy due to having seizures at functions where kids would be scared. As his mom, I wanted to show him it was okay to be a little different. Building his confidence to walk proudly in his truth and make new friends. It wasn't until he was playing at a birthday party and had a seizure episode that kids asked questions. It hit me that not many people understand what happens, especially kids.

We came up with, "My brain is like a lightning storm and sometimes sends too many sparkles at once." This seemed to not only explain what was happening but also make kids understand simply.

• Format: Paperback
• Language: English
• ISBN: B0DHSCR4JR
• ISBN13: 9798339750239
• Release Date: September 2024
• Publisher: Independently Published
• Length: 28 Pages
• Weight: 0.20 lbs.
• Dimensions: 0.1" x 8.5" x 8.5"

Customer Reviews

Sloppy AI imagery used in “The Sparkle in my Brain”

I was looking forward to sharing this with my epileptic child only to realize all the images are sloppy AI creations. I’m an artist who is currently working on a children’s book and seeing this was especially insulting to myself and my profession. It went straight in the garbage.