This is the kind of book that every person involved with families living with congenital heart defects should have. Inside you will travel from the point of discovery, to finding support and on through having hope for tomorrow as you meet over sixty inspirational women. These women come from all over the world but they have a very strong bond--they all live in the congenital heart defect community. Book jacket.
This is a book that all moms of children with heart defects should read at some time in their lives. It contains essays from "real moms" and their journeys with their "heart children". At times I thought I was reading about my own experiences of living with and caring for a child with a serious heart defect. It validated the feelings that I have and comforted me in knowing that I am not the only one going through this. Many of these essays will have you in tears, but others will have you experience the same joy these families have felt watching their children grow up into healthy, happy, productive adults, and to know that it can happen for my child is inspiring.
an emotional guide through an overwhelming medical journey..
Published by Thriftbooks.com User , 25 years ago
You will no doubt be bombarded by medical information when you have a child with a congenital heart defect. While this info is crucial to making decisions about your child's medical care, it will not prepare you for the emotional journey of parenting a child with a CHD. This book helped me look forward for my son's future and remember the children we knew who didn't make it. Also look at www.tchin.org and www.babyheartspress.com. Good luck and may the angels watch over you as they have us....
Answers to my questions
Published by Thriftbooks.com User , 25 years ago
How does having a child with a Congenital heart defect change your life? Heart of A Mother may have the answers you are looking for.Armed with the information that my son Matthew had a congenital heart defect I went in search of answers. I couldn't find any books that dealt with this subject from a Mother's standpoint. I wanted to know how it would effect our family life. I had heard the medical statistics and now I wanted to know from other Mother's how their children grew and developed. What can Matthew achieve? Should you question the doctors or do you just blindly follow them? I had hundreds of questions that only another mother, father, grandparent or child could help me with. Anna's book contains over 61 heartfelt stories written by people like you and me, carefully woven together by Anna to form the book Heart of A Mother.
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