My Lupus Journey Journal [Large Print]

By Ebonie Robinson

Book Overview

Through the Storm: My Journey with Lupus and Invisible Illness"

Living with lupus, Gitelman's Syndrome, and Pyoderma Gangrenosum has been a battle fought mostly in silence-because my pain is invisible, but my resilience is not. In this raw and empowering memoir, I share my deeply personal journey through misdiagnoses, debilitating flares, and the emotional toll of chronic illness. But this is more than just my story-it's a lifeline for others navigating similar storms.

You'll find:

Brutally honest accounts of medication trials (including hydroxychloroquine, immunosuppressants, and biologics) and their life-altering side effectsPractical strategies to advocate for yourself in a medical system that often dismisses "invisible" symptomsThe emotional toolkit I've built to cope with grief, isolation, and the fluctuating identity of being a patientUnexpected gifts discovered in the struggle-how illness reshaped my purpose

• Format: Paperback
• Large Print: Yes
• Language: English
• ISBN: 1966719361
• ISBN13: 9781966719366
• Release Date: May 2025
• Publisher: Amzn Publishers
• Length: 436 Pages
• Weight: 1.28 lbs.
• Dimensions: 1.0" x 6.0" x 9.0"