This is a true story about my son who has Lennox Gastaut Syndrome and our journey thru life so far. Lennox Gastaut Syndrome is a rare seizures disorder with no cure. It is very hard to control with medication. I describe what we have went thru in the 15 years my son has had it. The Brain surgeries, the diets, the medications, behaivors and everything else that comes along with raising a child with LGS. My hope is to help inform other parents of what things are involved with this awful syndrome. I don't want anyone to not have someone to turn to about this, i want others to know there are people like me and my son who are living this now.
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