This is the life I have led for the past 71 years. It tells of the evolving from full health to a life filled with the struggle of coping with the disease known a s FSHD. Facioscapulorhumeral is a condition that causes the skeletal muscles to slowly atrophy.It also tells of the joys of living a full life and raising a family. It speaks of love and success. It is hope.
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