Cotton Candy on the Moon

By Kelsey Townsend-Miller

Book Overview

This book was inspired by my daughter Lilah. Lilah is a 4 year old little girl who was born with Recessive Dystrophic Epidermolysis Bullosa. A one in one million incurable, painful, and fatal genetic condition characterize by extreme fragility of the skin, connective tissues, and mucosal membranes. These children are often referred to as "butterfly children" as they are internally and externally as fragile as a butterfly. Although she fights open wounds and blisters daily, she is the epitome of strength and bravery. Her story and the story of many other butterflies inspired me to write this book. In hopes that children like Lilah might not feel so alone. They are the most incredible warriors on this earth They, like Lilah, are the heroes among us With more awareness comes the possibility of a cure Thank you for doing your part and sharing her inspirational story with your children

• Format: Hardcover
• Language: English
• ISBN: 1643723286
• ISBN13: 9781643723280
• Release Date: April 2020
• Publisher: Huskies Pub
• Length: 28 Pages
• Weight: 0.25 lbs.
• Dimensions: 0.3" x 8.5" x 8.5"
• Age Range: 5 to 12 years
• Grade Range: Preschool to Grade 7