In a world where comparing ourselves to others is our quick-and-dirty way of assessing whether we're doing okay, the parents of a disabled, special needs or medically fragile child can feel like they're never quite okay. Being the parent of such a child becomes part of your identity - a sore part; an injured and painful part. It's a bruise you don't like to touch, but there's no avoiding it. It's not that you don't love your child, or that you'd ever give her up. But it's not the same experience other parents are having. If there's no manual for ordinary parenthood, what are the parents of extraordinary children to do?
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