A tired butterfly wishes she didn't have to fly around each day. She imagines what it might be like to have a bigger body, or to have legs instead of fragile wings. But as she reflects on the reasons why butterflies keep flying, she begins to see the strength within her beautiful, breakable wings. This tender story was inspired by the courageous spirit of the "butterfly children," the boys and girls battling a rare disease known as Epidermolysis Bullosa, EB. Children with EB have skin as delicate as butterfly wings. Many live in constant pain, yet they get up each day and keep flying. Ali's friend Ella lives with EB, and she inspired the story. In the back pages of BUTTERFLIES KEEP FLYING, there's information about EB and also a QR code. Accessing the code takes readers to Ali's website and Ella's Page. There, readers can stay updated on Ella's EB journey and the latest EB news. A portion of profits from the book are donated to debra of America a nonprofit serving EB families.
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