This book goes through the journey of living with ARPKD/CHF from a child's perspective. It gives insight on routine tests that are done, what those tests are for and how they relate to the disease. Having a chronic illness as a child can be hard to understand. My hope for this book is to help those that are going though something similar, have someone they can relate to and know that there are other children out there that face many of the same challenges that they do.
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