A Beautiful Soul inside a Broken Body is the heartbreaking firsthand account of the McBride family's joy, sorrow, grief, and faith through the unthinkable. When Christina and Matt McBride found out they were expecting their son, Nathan, it was a moment of pure joy and celebration. The pregnancy went well for the first eight months; the only sign of trouble was a fetal heartbeat slightly below normal. However, Nathan arrived early through an emergency C-section to save his life. He spent his first month in the NICU, but no tests could answer for his low heart rate. After months of frustration and worry, Nathan was finally diagnosed with early myoclonic encephalopathy, a rare and terminal epileptic disorder. Nathan's parents were heartbroken, but their faith eased their grief. They learned to take joy in the smallest of milestones and in everyday memories. From the generous gifts of friends and coworkers that helped them spend more time with Nathan to the arrival of two perfect caregivers, God blessed the McBride family in many ways during their emotional journey. They learned along the way that God was in control, and they found peace even when facing the unimaginable.
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