Families are usually given a diagnosis, a prescription and a follow-up appointment in six months. What they are rarely given is the method. How to break a freeze without pulling on somebody's arm. Why the eight o'clock dose taken at half past eight costs you the morning. What a wet-sounding voice at dinner means. Why the gambling started, and what to do about it.
One hundred practical tips, each a page or two, each ending with one thing you can do today. No miracle diets, no false optimism, and no pretending this is a journey you were lucky to be given.
InsideWhat you are actually dealing with - on and off periods, why the blank face is not a mood, and why slowness is not reluctanceThe medication clock - the part of the job that is genuinely yours: timing, dose cards, hospital admissions, and never running the prescription to the wireMoving about, and freezing - cueing instead of pulling, weight shifts, wide turns, and getting out of a chair and a bedFalls and the home - the night route to the bathroom, blood pressure on standing, and what to do when somebody is on the floorEating, swallowing and the gut - the signs that swallowing is changing, weight loss, drooling, and constipation as a real symptomThe voice and the face - why "speak up" does not work, and how to stop people talking about him instead of to himThe nights - acting out dreams, night-time off periods, and protecting your own sleepMind, mood and behaviour - apathy, hallucinations, delusions, and the impulse control problems nobody warns families aboutAppointments and the system - exercise as treatment, the three therapies to ask for by name, and what to bring to a fifteen-minute consultationLooking after the carer - respite, resentment, and the sheet of paper that tells somebody else how to do this if you cannotWritten for the week you are actually inMost of the difficulty in Parkinson's is practical, and practical things have methods. Nobody sat down and told you what they were. Each of the hundred entries here is one of those problems, with what is happening and what to do, so you can read the one you are standing in.
Home care usually ends because the carer runs out, not because the patient does. There is a chapter here about you.
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Parenting & Relationships